We are on the home stretch for Cole's treatment and can't believe it's been almost a year since he was born and all this started. We saw Dr. Kronish last Wed. for a checkup and to get his Vinblastin and Doc was very happy with his progress. He's up to 19.6 lbs and is developing completely normally. The plan is to have 3 more Vinblastin injections (every 3 weeks), complete at-home meds, and be done with all treatment in early October. When this is done he will have 1 more CT scan to take a look at his organs and be done if all looks ok. Then it is just wait and see....... We will see Doc every month after treatment is completed and either an ultrasound or x-ray about every 3 months after that. Doc also said he would like to have his port removed soon after treatment has ended but we think we will keep it in for 6 months or so just in case. One sad thing is that Dr. Kronish whom we have a great relationship with and really respect is retiring Sept. 13th and we will be seeing a new doctor. We are fortunate we were able to have him this long b/c he originally was going to retire in December. He will be missed!
Love to you all,
Joe & Holly
About Cole Kambeitz
- Holly Kambeitz
- Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.
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