We had a great trip to Yosemite and met several other families with children with Histio. We raised over $3,000, way past our goal of $1,000 so we were thrilled with the generosity of our friends and family. We had the awesome opportunity to meet and talk with the leading doctor of LCH, Dr. Ken McClain, who came all the way from Houston. He answered some important questions for us and made us feel more optimistic about Cole's future.
This is the last month of Cole's treatment, finishing his 1 year program. (This is IF his CT scan shows positive results which we are 99% sure it will.) The scan is October 27th and we hope to have the results back the next day. Then it is checkups (ie. x-ray, ultrasound) every 3 months.
Cole is getting into everything these days! He is very mobile and curious. He is still such a happy baby and smiles all the time. His favorite things are water and our dog, Diesel. He could play with these things for hours. We are having so much fun with him and love him so much.
Much love,
Holly & Joe
About Cole Kambeitz
- Holly Kambeitz
- Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.
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2 comments:
HAPPY BIRTHDAY COLE! Glad you were able to get some piece of mind talking to the LCH doctor. Really happy the hike was a success.
Great pictures you guys! That must have been awesome. I'm glad to hear things are going well for baby Cole.
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