About Cole Kambeitz
- Holly Kambeitz
- Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.
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1 comment:
Hi,
I am so thrilled to read your blog regarding your son's recovery. It gives me a ray of hope. My sister's daughter (DOB Aug 15, 2009) was diagnosed with LCH at one month. She will be starting her first chemo next wk hopefully (if her haemoglobin is good). I was hoping if I can contact you further regarding treatment path. My sister lives in India and not much expertise is available there and all of us are trying to do our own research including the doctors treating her. I would sincerely appreciate your help. Everybody in my family is just praying right now. God bless your family.
Thank you.
tina
951-278-2963
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