Hi Everyone,
I just read an update on a fellow Histio blog - Liam's Lighthouse, and it inspired me to write this on Cole's blog. Liam had HLH, a more serious type of Histiocytosis and was a true fighter up until he passed away at 20 months old from an infection he suffered from his bone marrow transplant. On his updated blog, his mother Michelle encouraged us all to donate. Not only can we donate blood, but platelets (which they are in dire need of right now) as well as bone marrow. Some children have to wait many months to receive their BMT or do not receive it at all b/c not enough of us have donated our own. In Liam's case, he had to wait these many months b/c out of the 13 million donors worldwide, there was not a match. Finally, one was found.
I encourage you to go to your nearest blood donation center this month and donate! Joe and I plan to. And for bone marrow, it may sound intimidating but you can even register through the mail. www.dkmsamericas.org or www.marrow.org. They will mail you a kit and you send it back to them. It is just a swab of the cheek on a q-tip. Let's all do this so that no other child has to wait for transplant or doesn't have the chance to make it to transplant! Please do this for Cole.
Thank you!!
About Cole Kambeitz
- Holly Kambeitz
- Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.
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