About Cole Kambeitz

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Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.

Friday, October 17, 2008

Friday 10/17 - 2nd chemo treatment

Recapping what we got today from the docs:

Today was Cole's 2nd chemo treatment - our first time watching it and being there. It was really not a big deal watching him or having him get the chemo, just a clear tube of liquid injected in his Broviac tube.


We got an update from the doctor as follows:
  • Bilirubin a secretion from the liver is the same as it was - not better yet, not worse either - this is the key thing to watch
  • White blood counts - low - need to get special drug that we are getting trained to administer tomorrw. it's natural that this drops from chemo.
  • Platelets - fine (normally drops after chemo)
  • MRI - scan shows nothing in the brain - good news
  • Bone marrow - still waiting for the results from the boney portion of the bone - the liquid portion showed nothing

Took home more supplies so we can do the blood draws for the labs and keep his stuff clean

Another 3 hour journey to the hospital. At least we get free parking :)
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