Today is a good day - lots of good news. I guess we got to get used to having good days and bad days some days in between.
The good news:
1) Cole had a transfusion of 40ml of red blood. His hemoglobin levels must have been low, don't know the exact count. But that's usually what happens - it drops and then they transfusion then he looks a lot better.
2) His white blood count (ANC) is greater than 1,000 - the nurse thinks it was like 1,300. That's a huge difference from yesterday when it was only at 352. So now that it's over 1,000 he can begin therapy again.
3) Chemo tomorrow - that's good news in that it was only delayed a few days so he's basically still on track.
4) He is off his Neuopgin (G-CSF) drug that was used to increase his white blood count. It was a 7 day treatment and it's all done. That's good. One less drug for him. I have a feeling he may go on it again if his ANC drops, but hey what do I know..
5) His weight is up to 2.9KG which is 6lbs 6oz. He's almost at his birth weight. Just a few ounces shy. That's really good. He's been a gobbling away. He took down a whole bottle and then another little bit more after that. So he's on the big gobble gobble track to gain weight.
So that's it for now... What a difference a day can make. It's nice to know prayers are answered and his healing is progressing. We want to thank you so much for all your prayers and thoughts.
About Cole Kambeitz
- Holly Kambeitz
- Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.
Sunday, October 26, 2008
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