Finally an "easy" day - made it to Church (all of us) for the first time since Cole was born. People were very nice and it wasn't as overwhelming as I thought it might be. Met a member of our church Andy a pediatric lung specialist who works at Kaiser. He offered to help translate some of the medical speak for us and to be a nice go to person in case we face any problems with Kaiser. Amazing how God provides. We haven't had to worry about those problems yet, and I'll be honest Kaiser is doing the absolute best that can be given. Worlds leading specialist reviewed Cole's case, Bay Area oncologists met and discussed the case. Really nothing I could even think of that they aren't providing. We even get a few visits from an in-home nurse to help us with caring for Cole.
About Cole Kambeitz
- Holly Kambeitz
- Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.
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Andy Wen has been a blessing to our family. I'm so glad he has opened his heart to yours too.
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