Going to Hospital again - need to do a blood transfusion. His Hemoglobin levels are really low. So looks like we'll be there from noon on. Also he looks like he's been losing weight so we will see if they can add some supplements in with his normal food. We'll know more by the end of the day.
Update: Just got back from the hospital. Looks like Cole will be in overnight and maybe a few days. In addition to the blood transfusion, they are adjusting his nutrition so that he gains weight. He'll stay in the hospital until he in consistently gaining weight. So it may be a few days.
About Cole Kambeitz
- Holly Kambeitz
- Cole Jonathan Kambeitz was born October 5th, 2008. He was born with chicken pox-like lesions on his skin. After a CT scan, MRI, x-ray, ultrasound, and a biopsy, he was diagnosed with Langerhans Cell Hystiocytosis (LCH) at 3 days old. It affects his skin, liver and lungs. He completed treatment of 1 year of chemo and steroids and after a liver biopsy in late November '09 confirming no active disease, he is officially in remission. Today he is a very happy boy, excited to explore the world.
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3 comments:
I'm sorry, guys. My thoughts and prayers are with you. I wish you all the best every day. I'm glad Cole is tucked away in such a great facility but there's no place like home. Love, Lynne
Holly and Joe, (and Ruby of course) keep strong, eat well, and take care of yourself! My constant prayers are with you all. Love, Wina
I love you guys so much! Stay strong! We're praying for sweet baby Cole.
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